Donating to the Rare Sisters Batten Foundation allows us to give back to the Batten community through medical research and to families affected by this terrible disease.  The Rare Sisters Batten Foundation was founded and inspired by the community that has come together to support the Fries family, and now aims to give back to others that may also need some extra support along their Batten Journey.  


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The Rare Sisters have been so blessed to have so many "villagers" help raise funds.  We would love to partner with you or your business if you have any ideas for fundraising.  No fundraiser is too big or too small.  Please let us know what you have in mind by using this form.  Please include all details you have, such as date, place, event details, etc.

Thank you!

name *

email *


tell us about your fundraiser idea.

Thanks! Message sent.

Are you a realtor, or do you know one? (of course you do)

Hey Realtor!  This is where you can help.  By partnering with Rare Sisters you will help raise awareness, and funds for treatments and cures for all Batten kids.  When you partner with Rare Sisters as a realtor, you will be provided with a yard sign for your listings that advertises your listing as a Rare Sisters Batten Benefit Home. 


In return, we ask that you donate a portion of the proceeds from the sale of that home to the Rare Sisters Batten Foundation. The portion size is up to you, although we recommend a minimum of .10% per sale.  We also encourage you to ask your clients if they would be willing to partner as well with a matching donation.  


If you would like to partner with the Rare Sisters Batten Foundation, please click below, and we will get your signs out to you ASAP. 

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A portion of the proceeds from the sale of this home will be donated to the Rare Sisters Batten Foundation.

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