You are Invited | Expect Miracles Gala

We are so excited to be hosting the first Expect Miracles Gala this fall. Please mark your calendar for October 19, 2019, and register to attend. We will have a wonderful evening full of fun, education, advocacy, and experiences. Many options are available to support the event: Register as a guest, become an Advocate Table Sponsor and bring a whole table of your friends, become a sponsor, an event underwriter, or help by contributing and item to our silent or live auction. All of the details can be found here: All of the proceeds from this event will benefit the Rare Sisters Fund through the Beyond Batten Disease Foundation to fund a clinica

Summer and Back to School Update

Summer has come to a close. I am extremely thankful for this. Summer is hard around here. The girls thrive on routine, and the fighting and messes seem to be never-ending in the summer. The thing with my Batten girls is that its not your typical sibling fighting- it is usually more aggressive and dangerous. School is good for all of us. It gives us a break from each other, provides structure and routine, and creates space for others to nurture my girls, and for me to nurture them better when they are home. The girls really do enjoy being in school. They have a great group of classmates, and a terrific team of teachers and support staff. They continue to enjoy horseback riding therap

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© 2020 by Rare Sisters Batten Foundation

a 501c3 Non Profit Organization Tax ID 84-44-06415

PO BOX 746561

Arvada CO 80006


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