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We are Hiring: Respite Caregivers

We are in search of a caring, fun, and strong person(s) to provide respite care in the afternoons, and some weekends for Cecilia. Cecilia is 10, and suffers from CLN3 Batten Disease. She is blind, cognitively delayed, and requires one on one attention at all times due to her vision, impulsive and sometimes aggressive behavior. Cecilia is a sweet girl who loves art, music, and playing outside. Caregiver will be an additional support to the family, working mostly during the same hours that the family is also home. Caregiver will be paid through an agency as a respite caregiver with the option for community connector pay, and potential supplemental wages paid by the family. Caregiver mus

Registration is now open for the 2nd Annual Expect Miracles 5k!

We are so excited to announce that registration is finally open for the 2020 Expect Miracles 5k is now open! REGISTER NOW The 2020 Expect Miracles 5k will benefit medical research with the Beyond Batten Disease Foundation AND the Fries Family for expenses associated with clinical trials, a new van that will accommodate the increasing behavioral and mobility needs that Batten Disease brings. Please join us at a NEW location on May 31, 2020 at Westminster City Park! 5k and 1 mile fun run Food Trucks VANboree Carnival Vendor Fair NEW THIS YEAR JOIN A TEAM to run and fundraise together. PRIZES for team fundraising will be awarded at the event. BECOME A SPONSOR

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© 2020 by Rare Sisters Batten Foundation

a 501c3 Non Profit Organization Tax ID 84-44-06415

PO BOX 746561

Arvada CO 80006

foundation@raresisters.org

303-842-2680

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