Lilly, Lillian Jeanne, has a birthday on Sunday. She will be seven this year. Lilly is a wonderful sister, and friend. She loves unicorns, baby dolls, and Frozen. This sweet girl also has Batten disease. Each birthday is bittersweet at this point. We celebrate her life here on earth for the last seven years, but we know that her birthdays are limited.
In honor of her birthday, our challenge is that for everyone reading this donates $7 in honor of Lilly’s 7th birthday to the Beyond Batten Disease Foundation through Rare Sisters. The BBDF is a primary catalyst for research in finding treatments and cures for CLN3 Batten Disease.