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Save the Date & Opportunity to Help

January 9, 2020

This year, the Expect Miracles 5k event will be on Sunday, April 26, 2020.  Registration will open in Early February.  Proceeds will be benefiting the Beyond Batten Disease Foundation AND the Rare Sisters Trust for medical travel expenses and a new van that will accommodate the increasing behavioral and mobility needs of our Batten girls.  


It is time to start planning for the 2020 Expect Miracles 5k event.  We were so overwhelmed with support from our village last year, and we hope to keep it going this year.  We need your help to make this event a success.  Committees are forming now to help plan the event, and many hands make for great ideas, and light work.  If you are interested and able to help with any part of this event, please join us for the first planning meeting on Tuesday, January 14, 2020.  Please email raresisters.batten@gmail.com if you would like the details.




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