Batten CLN3 Research Conference
My head continues to spin. I was fortunate enough to be able to attend the Beyond Batten Foundation’s 1st ever in-person meeting on the...
New Home and other things...
We are so incredibly overwhelmed with the love and generosity of our village near and far. We would love to be able to thank each of you...
Diagnoses
As you may remember, we have been trying to find the source of Cecilia (age 8) and Lilly's (age 6) vision loss through genetic testing. ...
