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NEW Pre-Order Apparel in the Rare Sisters Shop

We are in full swing planning the Expect Miracles 5k event. Registrations are coming in steadily, and we are expecting a great crowd of supporters. There are a few original Rare Sisters shirts, and a brand new selection available for pre-orders. New apparel will be ready for shipping or pick up at the end of April. If you are attending the Expect Miracles 5k, you may pick up at the event at the Rare Sisters Boutique. SHOP HERE ——> https://www.raresisters.org/online-store We are still looking for sponsors, runners, and volunteers to make for a great day with our village! If you need to register for the Expect Miracles 5k, be sure to do so by April 15th to guarantee your race shirt and swa

Cecilia's Sleep Study

A few weeks back, Cecilia had a sleep study done. We went overnight to stay at the Childrens Hospital. She did so awesome with all the wires and stickers all over her body. She had a full EEG done while she slept. That means she had 30 probes glued to her head and face. In addition to this, she had the regular sleep study wires and stickers on her toes, legs, and chest. She also had to wear a cannula all night. She did go right to sleep, and she did sleep all night, except for to go to the bathroom, which was quite the ordeal to get her safely disconnected! The good news is that she had no seizure activity during the night. This is a huge relief! We were concerned that she might be

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© 2020 by Rare Sisters Batten Foundation

a 501c3 Non Profit Organization Tax ID 84-44-06415

PO BOX 746561

Arvada CO 80006

foundation@raresisters.org

303-842-2680

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