January - 2020

Save the Date & Opportunity to Help

This year, the Expect Miracles 5k event will be on Sunday, April 26, 2020. Registration will open in Early February. Proceeds will be...

Miracles Made | Thank You!

We are so grateful to our amazing community that came out to support us and the Beyond Batten Disease Foundation. Together we raised...

Please add raresisters.batten@gmail.com to your contacts to ensure you receive updates in your inbox and not in your spam folder.

Back to School

Expect Miracles 5k GOING VIRTUAL

We are Hiring: Respite Caregivers

Registration is now open for the 2nd Annual Expect Miracles 5k!

Save the Date & Opportunity to Help

Miracles Made | Thank You!

NIH 2019 | Days 3-5

NIH 2019 | Day 2

NIH 2019- Day 1