Save the Date & Opportunity to Help

This year, the Expect Miracles 5k event will be on Sunday, April 26, 2020. Registration will open in Early February. Proceeds will be benefiting the Beyond Batten Disease Foundation AND the Rare Sisters Trust for medical travel expenses and a new van that will accommodate the increasing behavioral and mobility needs of our Batten girls. It is time to start planning for the 2020 Expect Miracles 5k event. We were so overwhelmed with support from our village last year, and we hope to keep it going this year. We need your help to make this event a success. Committees are forming now to help plan the event, and many hands make for great ideas, and light work. If you are interested and able

Miracles Made | Thank You!

We are so grateful to our amazing community that came out to support us and the Beyond Batten Disease Foundation. Together we raised close to $150,000. These funds will be used to continue to find a treatment for CLN3 Batten Disease. We are so grateful for all who helped make this event a success. A special thank you to our blind hosts for the Dark Hors d’oeuvres Experience from the Colorado National Federation of the Blind. Thank you to all of the local bakeries that contributed to the wildly successful Dessert Dash. Thank you to all of our sponsors, auction donors, and especially to all of the guests that came out to enjoy the evening. Please enjoy some photos from the night from KW D

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© 2020 by Rare Sisters Batten Foundation

a 501c3 Non Profit Organization Tax ID 84-44-06415

PO BOX 746561

Arvada CO 80006


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