This year, the Expect Miracles 5k event will be on Sunday, April 26, 2020. Registration will open in Early February. Proceeds will be benefiting the Beyond Batten Disease Foundation AND the Rare Sisters Trust for medical travel expenses and a new van that will accommodate the increasing behavioral and mobility needs of our Batten girls. It is time to start planning for the 2020 Expect Miracles 5k event. We were so overwhelmed with support from our village last year, and we
We are so grateful to our amazing community that came out to support us and the Beyond Batten Disease Foundation. Together we raised close to $150,000. These funds will be used to continue to find a treatment for CLN3 Batten Disease. We are so grateful for all who helped make this event a success. A special thank you to our blind hosts for the Dark Hors d’oeuvres Experience from the Colorado National Federation of the Blind. Thank you to all of the local bakeries that con
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